Manual coverTreatment training for advocates

4 Side effects of ARVs

4.11 How to report side effects

23 July 2011

If you want your doctor to be able to understand your side effects and how they are affecting you, you will need to be able to describe them very clearly.

This will be important for your doctor to check for other causes (ie that diarrhoea is not related to food poisoning or low sex drive to low testosterone levels).

Recording side effects

The best way record side effects is to keep a side effects diary from when you start a new treatment until when you next see your doctor.

Include information about the following:

How often? – frequency

  • How often do you get symptoms?
  • Once or twice a week? Once every day, or 5-10 times a day etc?
  • Do they occur at night as well as during the day?

How long? – duration

  • How long do the symptoms last?
  • If you feel sick or get headaches, do they last for 20 minutes or for 3-4 hours, or for different times?
  • Is there a pattern to when they occur? Is this when you take your medications or at a regular time afterwards?

How bad? – severity

  • How bad are the symptoms?
  • Often it helps to rate them on a scale (from 1 for very minor to 10 for very severe).
  • A scale is a useful tool for describing anything that involves pain.
  • Recording how severe side effects are when they occur is better than recording them later.
  • Have you noticed anything that helps to reduce or stop them?

All this information can really help your doctor understand how difficult the side effects are.


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