{"id":11608,"date":"2016-07-07T13:28:38","date_gmt":"2016-07-07T13:28:38","guid":{"rendered":"http:\/\/i-base.info\/qa\/?p=11608"},"modified":"2017-02-06T23:51:21","modified_gmt":"2017-02-06T23:51:21","slug":"can-you-help-with-benefit-assessments-related-to-long-term-hiv","status":"publish","type":"post","link":"https:\/\/i-base.info\/qa\/11608","title":{"rendered":"Can i-Base help with benefit assessments related to long-term HIV?"},"content":{"rendered":"<p>Hi<\/p>\n<p>I am really sorry to hear you are having a rough time.<\/p>\n<p>The recent changes in support and benefits have affected a lot of people and many of the decisions to take away support are clearly wrong.<\/p>\n<p>The government polices on changes benefits appear to be a disaster. Examples of where this has clearly harmed peoples lives and quality of live are commonly reported in the press. The policies are changed to reduce costs irrespective of how many people need them.<\/p>\n<p>It is worth appealing every decision, although I expect you might already have done this. I have no information on how often\u00a0appeal are successful.<\/p>\n<p>Your particular medical difficutlties should be supported by a letter from your doctor, but sometimes even this support hasn&#8217;t been enough to retain benefits.<\/p>\n<p>I am happy to draft a letter than outlines some of the issues that affects people who have been HIV positvie for a long time, if this would help. Some people do have residual problems from early treatment. Many of us\u00a0also have special circumstances as we grow older, having lost so many friends, lovers and partners from HIV related complications, especially before there was effective treatment.<\/p>\n<p>As i-Base is mainly focused on treatment information, I am sorry that we do not have advocacy support for benefits and appeals.<\/p>\n<p>Some HIV organisations still provide this so it is worth contacting the groups closest to where you live &#8211; or national organisations &#8211; perhaps THT &#8211; to see if they can help. Citizen&#8217;s Advice Bureau&#8217;s offer free legal advice, but many of these have also had financial cuts and run more limited services.<\/p>\n<p>Have you visited either your local councillor or MP surgeries?<\/p>\n<p>Also, THT still run a Hardship Fund and it might be worth seeing whther they can help:<br \/>\n<a href=\"http:\/\/www.tht.org.uk\/our-charity\/Get-help-now\/Service-finder\/Results-page?freetext=hardship&amp;f=grp1%7cgrp2%7cgrp3%7c\">http:\/\/www.tht.org.uk\/our-charity\/Get-help-now\/Service-finder\/Results-page?freetext=hardship&amp;f=grp1%7cgrp2%7cgrp3%7c<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Do you have any information I can present to people such as DWP tribunal judges and housing officers to inform them how people are likely to be effected from the trials for the first HIV drugs and the years of vomiting, diarrhoea and toxic combinations of AZT, ddI, d4t, ritonavir in large doses etc?<\/p>\n<p>I was diagnosed with HTLV3 in 1983 before it was renamed HIV and took part in various drug trials, some of these drugs I do not have a name for as the trials were ended early due to patient deaths.<\/p>\n<p>I have various problems caused by toxicity but when I try to access services and benefits I am often denied the things I need as the people evaluating me think that HIV patients are not effected by the problems I describe. I have been turned down for PIP even though I had previously been given high rate DLA for life.<\/p>\n<p>The assessor and decision maker said they do not expect to see the symptoms I claim to have based on up to date information. I realise that I represent a small population of survivors as I lost all of my friends and partners. I only know of one other person who survived.<\/p>\n<p>I can hardly walk more than a few steps but the assessors decided I was faking it and decided could walk over 200 meters and took my car and disability benefits.<br \/>\nI had veneers applied to my teeth as the constant vomiting took off the enamel so it was done free on the NHS so that I would not be stigmatised. The dentist took them off recently and now I have a row of brown ugly teeth and suddenly understand what being stigmatised means.<\/p>\n<p>I need information to help argue my case for doing cosmetic work on the grounds that my mental health is effected. It certainly is and I no longer socialise.<\/p>\n","protected":false},"author":2,"featured_media":0,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[7,26,41],"tags":[],"class_list":["post-11608","post","type-post","status-publish","format-standard","hentry","category-all-topics","category-living-with-hiv-long-term","category-support"],"_links":{"self":[{"href":"https:\/\/i-base.info\/qa\/wp-json\/wp\/v2\/posts\/11608","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/i-base.info\/qa\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/i-base.info\/qa\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/i-base.info\/qa\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/i-base.info\/qa\/wp-json\/wp\/v2\/comments?post=11608"}],"version-history":[{"count":0,"href":"https:\/\/i-base.info\/qa\/wp-json\/wp\/v2\/posts\/11608\/revisions"}],"wp:attachment":[{"href":"https:\/\/i-base.info\/qa\/wp-json\/wp\/v2\/media?parent=11608"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/i-base.info\/qa\/wp-json\/wp\/v2\/categories?post=11608"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/i-base.info\/qa\/wp-json\/wp\/v2\/tags?post=11608"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}