Commentary: The Global Fund and treatment access in Latin America – a critical view
3 February 2004. Related: Treatment access.
Richard Stern, Agua Buena Human Rights Association
The Global Fund to Fight AIDS, TB and Malaria offers promises and hope for many, but a view from the field in Latin America and the Caribbean indicates that when it comes to antiretroviral treatment access, the complications are many and the promises offered by the Fund are slow to be fulfilled.
In Ecuador and the Dominican Republic, prolonged internal disputes involving CCMs [the “Country Coordinating Mechanisms” which are national partnerships of government, PWAs, NGOs and other agencies] and Principal Recipients [of the Global Fund grants] have meant that even though their proposals were accepted by the Fund in January 2003, the grant agreements had still not been signed as of late November, and thus no money has been received. These countries compounded the problem by deciding to wait for Global Fund money to arrive before starting to purchase antiretrovirals for targeted populations. Thus, ironically, the existence of the Global Fund has actually delayed treatment access in these countries.
There is another problem, somewhat less dramatic, that has occurred in almost every country. NGOs that in the past might have tackled violations of human rights or gaps in treatment access now have to consider whether such activism could cause them to lose access to Global Fund revenue received by their local CCM. It is important to remember that in Latin America, prior to the Global Fund, only minimal amounts of financial support have been available for civil society through national AIDS programmes. The Global Fund appearing on the scene represents a potential “windfall” of resources, and the dynamics related to advocacy have changed considerably. The key factor here is that most CCMs are, in fact, government controlled, even if that is not the Fund’s intention.
The domination of government in CCMs was dramatically illustrated in the Latin American/Caribbean Regional Meeting that the Fund held in Panama in late November. Incredibly, only eight of 160 participants were People Living with HIV/AIDS (PLWAs). The Fund had instructed CCMs to make their own selection as to who to bring to the meeting, and only four out of the 20 countries present – Costa Rica, Bolivia, Colombia and Cuba – actually included PLWAs in their delegation.
One of the most interesting moments in the Panama meeting occurred on the final day when nearly a dozen international agencies marched to the podium to present themselves. Among them were USAID, PAHO, GTZ, UNAIDS, the World Bank, the Interamerican Development Bank, UNDP and UNICEF. Many of the agencies made references to the hundreds of millions of dollars they have invested in the AIDS pandemic. After the speakers had concluded their presentations, Julio Cesar Aguilar, a PLWA from Bolivia, commented: “I am grateful that almost all of the agencies on this stage are working to help us in Bolivia. But I wonder how it is possible that as yet not even one PLWA in my country has received ARV treatment?”
Eighteen months after the Fund began operations, Global Fund money has only led to some 800 to 1,000 people receiving treatment in Latin America and an additional 1,000 in the Caribbean. Most of these are in Honduras and Haiti, which had their proposals approved in Round One, and some are in El Salvador. Argentina and Chile may also be providing some ARV access with funds provided by the Fund, but ARV access in these two countries was nearly universal even before the Global Fund began to provide funds.
With the impending arrival of Global Fund money, it seems almost inevitable that there is intense competition and distrust between civil society and government, as well as between NGOs themselves. In two of the countries mentioned above, the fight about who was to be the Principal Recipient was taken by NGOs to the Fund’s mid-level staff, and perhaps beyond, and this has resulted in delays which will set the process of actual disbursement of funds back as much as a year. Those who urgently needed ARVs in 2003 have had to wait until 2004. As many as 25% will not survive.
Another problem is that in some countries, NGOs that represent vulnerable populations such as gay/lesbian/bi/trans people are routinely denied legal registration, yet CCM regulations stipulate that only legally registered NGOs can benefit from Global Fund money. So, because of this Catch 22, these groups – which have a real ability to reach out to and conduct prevention work among their own populations – are supplanted by legally registered NGOs that suddenly appear on the scene and have no demonstrated track record in working with vulnerable populations.
Some of the accepted Global Fund proposals in the Latin American region were written by highly capable experts who joined forces with local CCMs only for the purpose of writing the proposal. In these cases, the accepted proposal does not always accurately reflect the country’s national AIDS programme or its ability to put large amounts of money to good use in AIDS programmes. Some proposals reflect mainly the writing and technical skills of the outside consultants who drafted the proposals.
Another issue is that the few civil society representatives on the CCMs often are well intentioned but poorly trained regarding more technical issues of programme implementation and medication purchase. Many of the PLWA representatives come from backgrounds where they simply have not been trained in the necessary areas. This puts them at a tremendous disadvantage when facing government AIDS bureaucrats who may dominate decision-making processes in areas to do with ARV access and other “technical” issues.
The only feasible solution to the problems elaborated above would be greater active participation of the Global Fund in CCM activities and programme implementation. The Fund is reluctant to do this because it has limited staff and it wants local capacity to develop and national AIDS programmes to become self-sufficient. One possibility would be for this to happen in phases with, at first, much more support from trained experts whom the Fund could employ after a proposal has been approved.
To suddenly present a previously impoverished and not particularly well-trained AIDS programme with the prospect of millions of dollars is certainly well intentioned but can sometimes lead to all kinds of unforeseen problems, ranging from inadequate infrastructure to rampant manipulation and corruption. People living with HIV/AIDS need treatment today, not in a year or two, but without more active guidance and “hands on” participation from the Fund, situations that are destructive and lead to long delays in treatment access will undoubtedly continue to occur.
Richard Stern (rastern@racsa.co.cr) is Director of Agua Buena Human Rights Association, based in Costa Rica. He travels widely in Latin America working with community groups on HIV/AIDS treatment issues. This article is reproduced from the Global Fund Observer Newsletter, a service of Aidspan. It represents the opinions of the author; Global Fund Observer has not taken a position on the matters discussed.
Agua Buena Human Rights Association
http://www.aguabuena.org/