Question

If I have just tested positive to HIV, what do I do next?

9 January 2007. Related: All topics, Newly diagnosed.

Answer

Answer: Simon Collins

If this is all new to you, it will take time to get your bearings and build up your strength to deal positively with your new life. It will also depend on where in the world you live.

The following suggestions may help:

1. Take some time to let the information sink in – unless you have symptoms – ie you feel ill – there is rarely any urgency to starting treatment.
2. Ask at the centre that you tested at, where your closest and best HIV doctors work – I know healthcare systems vary greatly in different countries. If you email us where you live we can perhaps make suggestions of where to start.
3. You will need to have a blood test called ‘CD4 T cell count’ to see whether HIV has affected your immune system yet, and a viral load test if it is available in your country.
4. Find some good sources of accurate, easy to understand, clear information so you can learn about your diagnosis, and the benefits of treatment, if and when you need it, for example the i-Base Introduction to combination Therapy.
   The US community site AIDSmeds.com have a useful link for people who have just tested HIV-positive, and forums where you can ask questions and read about other people reactions.
5. It is difficult to deal with an HIV diagnosis on your own. Consider telling a close friend that you trust, or see whether there is an HIV support group or organisation in your area. It can help to meet and know other people in a similar situation. Many organisations also offer support services, such as phonelines, where you can talk anonymously, if this is important to you at first.

Things will get easier, although it may take time.

Please email us if you have other specific questions if you think we can help.