Resources on Long COVID

Simon Collins, HIV i-Base

Many of the following links were included in previous issues of HTB. Other related resources are added below.

UK Independent SAGE webinar on Long COVID (17 June 2022).

MMWR review estimates 1 in 5 people have at least one symptoms that qualifies as long COVID.
Bull-Otterson L et al. Post–COVID Conditions Among Adult COVID-19 Survivors Aged 18–64 and ≥65 Years — United States, March 2020–November 2021. MMWR Morb Mortal Wkly Rep 2022;71:713–717. icon.

Upcoming virtual workshop:
Long-Term Health Effects from COVID-19 and Implications

Monday, March 21, 2022 – 10:30am – 4:00pm US Eastern time
Tuesday, March 22, 2022 – 10:30am – 3:30pm US Eastern tim
The National Academies will hold a public workshop to explore the long-term and potentially disabling health effects stemming from COVID-19 infection and how they might impact survivors’ ability to work.
Free registration.

Long COVID may be more common in people living with HIV
HTB review of small US study (Peluso et al, see below).

Post-acute sequelae and adaptive immune responses in people living with HIV recovering from SARS-COV-2 infection. Peluso MJ et al. Preprint. medRxIV. (14 February 2022).

Post-acute effects of SARS-CoV-2 infection in individuals not requiring hospital admission: a Danish population-based cohort study. Lund LC et al. Lancet Infect Dis.2021. (Oct 2021).

Outcomes at 6- and 12-months in >1200 adults with COVID-19 in Wuhan, China. Approximately 50% reported at least one complication sustained to 12 months.
Ref: Huang L et al. 1-year outcomes in hospital survivors with COVID-19: a longitudinal cohort study. Lancet. DOI: 10.1016/S0140-6736(21)01755-4 (28 August 2021).

Lancet editorial. DOI: DOI: 10.1016/S0140-6736(21)01900-0. (28 August 2021).

The HIV Movement Must Come Through
JD Davids in POZ magazine. (June 2021)

Long-time HIV activist JD Davids, writes about approaches to managing Long COVID through their experience of living with myalgic encephalomyelitis (ME) and lessons from HIV activism. Also includes a resources section.

See also online seminars from August 2020 that include many other community presentations.

Long COVID website

One of the early and leading community websites

Body Politic website

Another early peer-led community website.

Webcasts of two-day US Workshop on Long COVID (PASC) now online
HTB (22 January 2021).

HTB report on meeting and webcasts from an important 2-day NIH workshop on Long COVID with online links.

NIHR. Living with COVID-19.

A 29-page NIHR review also looks a personal experiences of COVID-19 including the increasing reports of long-term symptoms and how to manage them.

NICE issue UK guidelines on long COVID
HTB (22 January 2021).

Summary of UK guidelines for health workers managing Long COVID.

Long COVID: studies reporting on long-term follow up on COVID-19.
HTB (3 March 2021).
Review of five studies reporting duration of post-COVID that includes new symptoms after COVID was thought to have finished.

Long COVID: Mild infection and sustained long-term complications.
HTB (20 October 2020).

Pathogenesis and treatment of COVID-19 including Long COVID
HTB (14 October 2020).

HTB report of an excellent talk by Professor Karine Lacombe from the Glasgow HIV Congress.

Management of post-acute covid-19 in primary care.
BMJ 2020; 370 doi:10.1136/bmj.m3026. (11 August 2020).
A BMJ podcast on post-acute and chronic COVID-19 to support management in primary care.

Characterizing long COVID in an international cohort: 7 months of symptoms and their impact.
Davis HE et al. Pre-review draft. MedRxiv. DOI: 10.1101/2020.12.24.20248802. (5 April 2021).
An early community survey published as a pre-review paper that included approximately 4000 people self-reporting symptoms.

Recovery from severe COVID-19: leveraging the lessons of survival from sepsis.
Prescott HC et al. JAMA. 2020;324(8):739-740. DOI:10.1001/jama.2020.14103. (5 August 2020).
A useful article on recovery from severe COVID-19 in JAMA.


Links to other websites are current at date of posting but not maintained.