AEGiS was one of the first organisations to recognise the importance of the internet and email technology as an educational resource. Developing from two early bulletin boards in 1991, AEGiS became the largest free-access virtual HIV library, including the i-Base HIV Treatment Bulletin. Unfortunately, AEGiS came offline in 2013, although i-Base has an archive of this resource.
The US aidsinfonet site produces and maintains an excellent up-to-date range of factsheets in easy to understand language. It includes over 150 factsheets arranged into around 20 categories, some of which are included below. They are produced in English and Spanish, and includes a growing selection of translated factsheets in other languages.
The British HIV Association is a professional assocaition in the UK focused on HIV and related complications. It holds two conferences each year and publishes evidence-based guidelines on many aspects of HIV management.
CHAIN is a Ugandan organisation that was originally developed by UK activists in 1998. The group runs health programmes on treatment literacy, prevention and children’s support, with a focus on capacity building and strengthening networks and partnerships of grass roots non-governmental organisations operating in the HIV and AIDS sector in Africa.
European network of treatment activists. Projects include the European CAB. Members of the i-Base team have been actively involved in the EATG since 1997.
HIV-positive, peer-led HIV advocacy project based in Lisbon.
HIV-positive, peer-led HIV advocacy project based in Barcelona.
A leading international educational HIV drug interaction website developed and run by the team of pharmacology experts based at Liverpool University. The source from many HTB articles on pharmacology and drug interactions.
A peer-to-peer training and educational project for medical professionals and treatment activists facing critical HIV treatment issues. i-Base is the medical information partner for HIVTRI.
The leading network of Italian HIV-positive organisations.
TAC is the leading civil society force behind comprehensive health care services for people living with HIV&AIDS in South Africa. Founded in 1998 TAC has more than 16,000 members and 267 branches. i-Base works with TAC to help develop training publications and treatment literacy workshops.
TAG is a US organisation focussed on policy related to AIDS research and related health issues, founded in 1992 from members of ACT-UP New York. TAG contributes articles on basic science and vaccine research to HTB and helped produce the i-Base HCV coinfection guide. In 2010 i-Base collaborated on the annual pipeline report.
The UK CAB is a national HIV advocacy network with more than 800 members. It started in 2002 as an i-Base project and that is now coordinated by a steering group elected by the members, with i-Base providing administrative support.
Clinical research groups and advisory groups
Advocates at i-Base are involved with a wide range of research groups.
- INSIGHT network – (scientific and community committees) and developing CAB membership for UK sites.
- PARTNER study – looking at transmission risk with partners where the HIV positive person is on stable active treatment. Including steering committee and developing a CAB network support in the UK and Europe.
- HALL – UK ageing study – New MRC funded study to carry out in depth interviews with 60-80 HIV positive people older than 50 years.– On steering committee to develop broader community involvement via the UK-CAB.
- LEAP – Long-Acting Extended Release ARV Resource Programe.
- POPPY – large UK ageing study: 1000 HIV positive people (500 over 50 and 500 under 50) plus 500 HIV negative controls. Annual visits, with a full clinical assessment and assessment of neurocognitive function, frailty, TDMs, DEXAs, questions on quality of life, lifestyle and healthcare resource usage etc., as well as sample storage.
- PENTA Network – European paediatric trial network. This position has also included training in Uganda and Zimbabwe with European paediatricians for local trial networks.
- Lablite – MRC implementation of DART project likely to be in Uganda and Zambia. Advisory committee, will include work with local community groups.
- AALPHI – Adolescents and Adults Living with Perinatal HIV
- ASTRA – Antiretrovirals, Sexual Transmission Risk and Attitudes – large survey that includes evaluation of rates of undiagnosed depression and mental health
- PROUD – First pilot study of PrEP in the UK in high risk groups, including high risk young gay men who will otherwise be unlikely to access PrEP
- CHERUB (Collaborative HIV Eradication of Reservoirs: UK BRC) Scientific Steering Committee (SSC) – New group co-ordinating HIV cure research in the UK
- Supporting Uptake and Adherence to Antiretrovirals (SUPA) – NIHR funded study to help identify improved interventions for adherence support.
- DHICE – HIV database project – now providing a one-day a week post to broaden community awareness of database research in the UK.
- Advisor on several new NIHR-funded research proposals including and adherence intervention study being led from Brighton, a testing study being led from Mortimer Market and a group of prevention studies known collectively as CAPRA (including PARTNER, ASTRA, CIPHER and START and a potential PrEP study with the HPA).
- Drugs for Neglected Diseases initiative (DNDi)– advisor to paediatric development project. Included helping set up an advisory board.
- Southern African Clinicians Society – Advisor and contributor to the Journal and Nurses magazine.
- EACS, PENTA and BHIVA guideline panels, annual Lipodystrophy Conferences, and BHIVA scritineers board.
- As reviewers for abstracts for the IAS and ICASA conferences, the BMA patient information awards and the journals HIV Medicine and the Journal of Viral Eradication.
- NHS National Reference group.
- London Drugs and Treatment sub group, responsible for the London-wide provision of treatment and care.
- COBRA study (CO-morBidity in Relation to Aids) – Scientific Advisory Board (includes the POPPY and AgeHIV studies.
Last updated: 1 February 2017