Can I restart on Trivenz after a break?
Hi, I’m a 29 years old male and was diagnosed HIV positive when I was 20.
I was not on treatment since then until last year when I diagnosed with TB. It was difficult to believe that I was HIV positive until when I got sick last year and my CD4 was 87. I finished TB treatment for 9 months and started taking Trivenz. When I was about to renew my script for HIV treatment I realized that I didn’t have funds on my medical aid but was able to take bloods reviews.
My doctor refused to renew the script for me and I was struggling financially. I stopped taking treatment for 2 months and was able to see my doctor again to renew my script when I got cash. My results showed that my CD4 was on 180 when I went for bloods reviews 2 months ago and my doctor advised that I continue taking Trivenz now after being off on treatment for two months.
I’m worried that I might be resistant to same drug now. Please advice what must I do or should I change the doctor?
Thanks for the questions and sharing your experience.
It sounds like you have had a difficult time and also been very lucky to have responded well to both HIV and TB meds.
In the short-term, it is probably better now to start Trivenz again as soon as possible. Although there is a small chance you developed resistance, it is much more likely that restarting will be okay. Because your CD4 count went so low before you went on treatment you really need to be taking HIV meds everyday.
In the longer term, it sounds like you need health care that will ensure your meds are always there. This might involve finding out whether free meds are available in other ways. If your doctor is not helpful and you have a choice of other doctors, then see whether someone else might be more helpful.
You didn’t say which country you live in so I can’t comment on the health system. For example, in the UK HIV meds are free and in the US there is ADAP and medicaid to help if you have low income. Many other countries have similar free healthcare.
Please let me know how you get on and if you have other questions.