Q and A

Question

Am I at risk if I have not been on treatment for 10 years?

Hi my question is I found out about my HIV status 12 years back and I didn’t start medication directly, I was in shock still and my fiance already left me.

Later after 2 years I started medication for 5 months and because of the way my family started treating me bad after they found out. I stopped taking meds. Up to today.

I thought am gonna die anytime but am healthy no symptoms, I never got sick for about 10 years with no medications.

Am I still in danger and I have been in different r/ship none of them got it?

Answer

Hi there

Thanks for your email – and for sharing your story.

I am sorry you have been treated so badly and that you disconnected from care because of this.

Please do contact a clinic again so they can test your current CD4 and viral load results.

It sounds like you have just been very lucky to have not become ill over these years. Even if you feel well now though, your CD4 count could be very low and you could easily become very ill.

Whatever your family said then, HIV treatment is now very advanced. I would hope that stigma is less now. But even if not, please don’t let what your family said stop you having access to the meds that can save your life and keep you healthy for many years.

The doctors at the clinic will want to help you so please contact them.

2 comments

  1. Josh Peasegood

    Hi Helen, since you have become HIV positive have you had any tests to find out your viral load and/or CD4 count?

    How have you been adjusting to being HIV positive? has anything in your life changed since finding out your status?

    How much weight have you lost in the last year? are you concerned by what weight you have lost?

    You do not need to be afraid about starting treatment. People all over the world are on HIV treatment and doing well. For most they do not experience side effects and are able to take their treatment without a problem. Some do experience side effects though this is more common with older combinations. This can be avoided with newer combinations or even some people will get used to them over time.

    Do you know where you will go to access treatment? Most people get HIV meds from their local clinic.

    More information about starting HIV treatment can be found here: https://i-base.info/guides/art-in-pictures

  2. Helen

    Am HIV I found out last year but I have not started taking drugs am not sick noting at all is wrong with me apart from am so slim now I was once a chubby person so I want to know if I start taking ARV drugs hope I won’t fall sick that is what am afraid of now pls I need answers thank You.

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